I pick you up once again
It’s becoming a part of our every day
You’ve even begun to curse under your breath
The frustration apparent
As you allow me to lift you back onto the lounge.
You’ve begun those statements
The ones I never wanted to hear
‘Put me away’
‘Put me down’
‘We are all clumsy babe,’ I say
‘You’re just a bit more than most.’
Making light doesn’t cut it when ever step
Is prefaced by a terror of being your last.
You grimace at me, you know I am here
But I see the dark clouds hovering ever closer
As the falling increases and the standing diminishes.
We know it’s a matter of time
Every diagnosis tells us that
But we hang on to what we have
Every minute with you a blessing.
We find humour in what we do
At times our clumsiness makes us both laugh.
Slippin’ and slidin’ its what we do
Rockin’ and rollin’ is who we are
Droppin’ and stoppin’ is NOT who we are
Tomorrow is a long way off
When each second of the now
Is precious beyond words.